FDF Attends 2017 FDMAS Patient Meeting in Birmingham
Advocacy News Foundation News Patient Spotlight Treatment NewsPatient and researcher meetings are important because they allow a rare disease community to learn, organize, strategize, and take action. This year, patient and family meetings were held in Maryland in the United States, Leiden in the Netherlands, and Birmingham in the UK. FDF hosted the United States meeting and attended both European meetings, including […]
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Patient & Family Conference Continues the International Fight against FD/MAS.
Foundation NewsFD/MAS is a disease without borders or boundaries. All FD/MAS patient groups share goals, including connecting families with the best available treatment information, and advancing the search for a cure or treatment for this rare disease. Patient meetings are important to reaching these goals. Patient meetings help advance the fight against FD/MAS by empowering patients […]
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