Patient & Family Conference Continues the International Fight against FD/MAS.
Foundation NewsFD/MAS is a disease without borders or boundaries. All FD/MAS patient groups share goals, including connecting families with the best available treatment information, and advancing the search for a cure or treatment for this rare disease. Patient meetings are important to reaching these goals. Patient meetings help advance the fight against FD/MAS by empowering patients […]
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When in Rome: Fight for Real Progress
Advocacy News Foundation News Research NewsAs the international research conversations about fibrous dysplasia and McCune-Albright syndrome (FD/MAS) treatment continue to build, patients need to be at the center of that dialogue. “As a kid and teenager, I only talked about my MAS when I was at the doctor’s office. That was it,” said FDF Board member and MAS patient, Lauren […]
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