News

COVID-19 and FD/MAS an Updated Conversation

Treatment News

On March 12th FD/MAS Alliance hosted a COVID-19 and FD/MAS update from experts at the NIH and UCSF. Here are some major takeaways: Continue to look at guidelines from trusted sources such as the CDC for guidelines on travel, social distancing, and mask wearing All approved vaccines are safe for the FD/MAS community to take […]

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A New Team FD/MAS, Same Focus on Research

Foundation News Research News

The year 2020 has felt different from 2019 in so many ways, but some important things have remained consistent. This year, just as in the last 5 years, Team FD/MAS will be awarding a research grant to an FD/MAS researcher through the UPenn Orphan Disease Center’s (ODC) Million Dollar Bike Ride. With thanks to Association […]

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FDF Welcomes new Leaders and Advisors

Foundation News

FDF is thrilled to welcome Lauren Cox and Leah Suprise to our Board of Directors. Those who have been in the FD/MAS community for some time will be familiar with these two dynamic, driven, and passionate advocates.  Lauren Cox is an FD patient and the graphic designer behind the FD/MAS awareness ribbon. Lauren’s work with […]

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FDF Welcomes Dr. Daniel Handel to the Medical Advisory Council

Foundation News Treatment News

The Fibrous Dysplasia Foundation (FDF) is pleased to announce that Dr. Daniel Handel has accepted an invitation to join the FDF Medical Advisory Council. The Medical Advisory Council is a body of talented clinicians with substantial experience treating FD/MAS who contribute to FDF initiatives and advise the FDF on matters related to medical treatment. Dr. […]

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