Welcoming Audrey Thurm to the Medical Advisory Council
Foundation NewsWe are delighted to announce the addition of Audrey Thurm, Ph.D., to our Medical Advisory Council. Dr. Thurm is a psychologist at the NIH and has worked closely with Medical Advisory Chair Dr. Alison Boyce to provide support to the families enrolled in the FD/MAS Natural History study that Dr. Boyce oversees at the NIH. […]
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COVID-19 and FD/MAS an Updated Conversation
Treatment NewsOn March 12th FD/MAS Alliance hosted a COVID-19 and FD/MAS update from experts at the NIH and UCSF. Here are some major takeaways: Continue to look at guidelines from trusted sources such as the CDC for guidelines on travel, social distancing, and mask wearing All approved vaccines are safe for the FD/MAS community to take […]
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A New Team FD/MAS, Same Focus on Research
Foundation News Research NewsThe year 2020 has felt different from 2019 in so many ways, but some important things have remained consistent. This year, just as in the last 5 years, Team FD/MAS will be awarding a research grant to an FD/MAS researcher through the UPenn Orphan Disease Center’s (ODC) Million Dollar Bike Ride. With thanks to Association […]
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FDF Welcomes new Leaders and Advisors
Foundation NewsFDF is thrilled to welcome Lauren Cox and Leah Suprise to our Board of Directors. Those who have been in the FD/MAS community for some time will be familiar with these two dynamic, driven, and passionate advocates. Lauren Cox is an FD patient and the graphic designer behind the FD/MAS awareness ribbon. Lauren’s work with […]
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FDF Welcomes Dr. Daniel Handel to the Medical Advisory Council
Foundation News Treatment NewsThe Fibrous Dysplasia Foundation (FDF) is pleased to announce that Dr. Daniel Handel has accepted an invitation to join the FDF Medical Advisory Council. The Medical Advisory Council is a body of talented clinicians with substantial experience treating FD/MAS who contribute to FDF initiatives and advise the FDF on matters related to medical treatment. Dr. […]
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