News

Picture of left to right: Cindi Brandt Levin, Anne Corvelle, Tovah Burstein and Sarah Healy at the Million Dollar Bike Ride

Team FD/MAS 2024 Update!

Research News

UPDATED JUNE 18th 2024: We are excited to share that we’ve received over 150 donations for Team FD/MAS research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride (MDBR). Thanks to a $30,000 match from UPENN and donations from the Association MAS/FD in France, we’ve already raised over $95,000. THANK YOU! But we’re not […]

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Team FD/MAS Dispatch!

Foundation News Research News

Following our May 21st $20 Tuesday rally, Team FD/MAS has exciting news to report! We have unlocked the UPenn match gift of $30,000!  Major thanks go to Association MAS/FD of France, led by Aurelie Lagneau who made a generous pledge that pushed Team FD/MAS over our first benchmark goal. Thanks to the 3 fundraisers, 15 […]

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Team FD/MAS Research Update 2024

Research News

For ten years now, Team FD/MAS has been dedicated to funding promising research projects through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. During that time, the community has supported 20 research projects to advance FD/MAS research and, ultimately, find a treatment or cure for FD/MAS. In 2021, Team FD/MAS led by Team Captain Cindi Brandt Levin and […]

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Team FD/MAS 2023 Research Grants Announced

Research News Uncategorized

FD/MAS Alliance is thrilled to share that three fibrous dysplasia, McCune-Albright syndrome (FD/MAS) research grants have been awarded from Team FD/MAS’s 2023 Million Dollar Bike Ride efforts! Last spring, Team FD/MAS raised $161,620 for FD/MAS-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of nine applications by the FD/MAS […]

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$160K FD/MAS Research Funding Available

Foundation News Research News

We are delighted to share the Request for Applications for this year’s Team FD/MAS Million Dollar Bike Ride grants:   Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare multisystem disease caused by somatic mutations in GNAS. The mutation results in constitutive activation of the Gsα cAMP signaling pathway. Skeletal manifestations include bone pain, fractures, deformity, and […]

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Mouse Models, Research, and Hope

Research News

We had the pleasure of interviewing Yingzi Yang, Ph.D., Associate Dean for Research and Professor of Developmental Biology at the Harvard School of Dental Medicine. Dr. Yang is a leading scientist/researcher in skeletal biology and genetic disease studies and the recipient of a Team FD/MAS Million Dollar Bike Ride award. Dr. Yang received her B.S. […]

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2021 Team FD/MAS Research Grants Announced

Foundation News Research News

FD/MAS Alliance is thrilled to share that three FD/MAS research grants have been awarded from the 2021 Million Dollar Bike Ride! Last spring, Team FD/MAS raised $161,373 for fibrous dysplasia, McCune-Albright syndrome (FD/MAS)-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of several applications by the FD/MAS Alliance’s Scientific […]

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2021 FD/MAS Research Funding Opportunity Announced

Research News

We’re thrilled to announce that research grants of up to $80,867 to study fibrous dysplasia or McCune-Albright syndrome are now available thanks to the work of Team FD/MAS in the UPenn Orphan Disease Center’s Million Dollar Bike Ride. The one-page letter of interest (LOI) is due Thursday, September 16th, 2021 by 8pm EST.  Please read […]

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How close are we to developing a drug to treat FD/MAS?

Research News

How close are we to finding a treatment for FD/MAS? An audience member posed this question in a recent update from 4 researchers funded by Team FD/MAS, and the answer? It depends.   Because of your generosity, the last few years have been a real breakthrough for FD/MAS. Team FD/MAS has been partnering with the […]

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The 2020 Team FD/MAS Awardee

FD/MAS Alliance and UPenn ODC Award the 2020 FD/MAS Research Grant

Foundation News Research News

We’re thrilled to share the news that the 2020 Team FD/MAS Million Dollar Bike Ride Research Grant has been awarded to Dr. Mara Riminucci for her project entitled: Osteoclasts and Pain in Fibrous Dysplasia: Investigating and targeting the molecular links in a transgenic mouse model (EF1α-GsαR201C mice) of human fibrous dysplasia Dr. Riminucci will receive […]

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