Missed the Conference? You Can Still Learn From the Experts

Advocacy News Foundation News Patient Spotlight Research News Treatment News

Patient and researcher meetings are important because they allow engaged members of a rare disease community to organize, strategize, and take action. This year, patient and family meetings were held in Maryland in the United States, Leiden in the Netherlands, and Birmingham the UK. FDF hosted the United States meeting and attended both European meetings.  […]

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Patient & Family Conference Continues the International Fight against FD/MAS.

Foundation News

FD/MAS is a disease without borders or boundaries. All FD/MAS patient groups share goals, including connecting families with the best available treatment information, and advancing the search for a cure or treatment for this rare disease. Patient meetings are important to reaching these goals. Patient meetings help advance the fight against FD/MAS by empowering patients […]

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