One Boy’s Question, One Family’s Answer
Foundation News Patient SpotlightOrit Beitler and Ziv Rozenblum of Massachusetts joined Team FD as fundraisers for the first time this year. “Our son Jonathan is 7 years old and was diagnosed with fibrous dysplasia (FD) when he was 5. It all started with a rapid and unexpected loss of weight followed by a fracture to his skull as […]
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Take it as your Torch: An Advocate Embraces his Unique Experience
Foundation News Patient SpotlightEverybody has their dark days, and for fibrous dysplasia, McCune-Albright Syndrome (FD/MAS) patients, those days can be shrouded in excruciating pain and the isolation of dealing with a rare disease. Canadian Author Jonathan Birdsall has taken those dark feelings and turned them into art. Jon recently published a novel, The Cripples Game and has a […]
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