Researchers and Advocates Move Forward with Department of Defense Funding
Advocacy News Foundation News Research NewsOne of the biggest initiatives that FDF is working on right now is the Peer Reviewed Medical Research Program (PRMRP). The PRMRP is a huge research opportunity that our team of advocates have unlocked for FD/MAS researchers through the US Department of Defense’s Congressionally Directed Medical Research Program (DOD CDMRP). Thanks to the tireless efforts […]
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An FD Warrior’s experience at Rare Disease Week!
Advocacy News Foundation NewsEvery year, during the week of Rare Disease Day, FD/MAS advocates and rare disease advocates from other communities gather on Capitol Hill in Washington. These advocates use this time to encourage lawmakers to support legislation that helps the rare disease community including advocating for NIH research funding. This year, FD Warrior Brittany Anderson was among […]
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Fibrous Dysplasia Included in the Department of Defense Appropriations Bill
Advocacy News Foundation News Research NewsWashington DC (December 20, 2019) Fibrous Dysplasia Included in the Department of Defense Peer-Reviewed Medical Research Program We are grateful for the support of the Chairs and Ranking Members of the Appropriations Committee and the Defense Appropriations Subcommittee, the individual members on the Subcommittee and the Senators, as well as their staff. Thanks to their […]
Click to Read A Seat at the Federal Research Table
Advocacy News Foundation NewsWashington DC (October 18, 2019) Fibrous Dysplasia included the Department of Defense Peer-Reviewed Medical Research Program Thanks to our champion who sits on the Appropriations Committee, Senator Patty Murray (D- WA), Fibrous Dysplasia made it into the Senate DOD Appropriations Committee recommendations to the Secretary of the Department of Defense in conjunction with the US […]
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