FD/MAS Federal Research Funding Initiative

Advocacy News Research News

The FD/MAS community of researchers and advocates continues forward with the Department of Defense Funding Opportunity One of the most significant initiatives that FD/MAS Alliance continues to advance is the Peer Reviewed Medical Research Program (PRMRP). The PRMRP is a major research opportunity that our team of advocates has unlocked for FD/MAS researchers through the […]

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A Patient’s Roadmap for Curing Rare Disease

Advocacy News Foundation News

Adrienne McBride attends the Global Genes Summit Having recently embraced my role as the new executive director of the Fibrous Dysplasia Foundation (FDF), I embarked on a steep learning curve.  Fibrous dysplasia, McCune-Albright syndrome (FD/MAS) is a very complicated disease and the path to treatment can feel daunting. Luckily, I am surrounded by an extraordinary, […]

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