$160K FD/MAS Research Funding Available
Foundation News Research NewsWe are delighted to share the Request for Applications for this year’s Team FD/MAS Million Dollar Bike Ride grants: Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare multisystem disease caused by somatic mutations in GNAS. The mutation results in constitutive activation of the Gsα cAMP signaling pathway. Skeletal manifestations include bone pain, fractures, deformity, and […]
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2021 Team FD/MAS Research Grants Announced
Foundation News Research NewsFD/MAS Alliance is thrilled to share that three FD/MAS research grants have been awarded from the 2021 Million Dollar Bike Ride! Last spring, Team FD/MAS raised $161,373 for fibrous dysplasia, McCune-Albright syndrome (FD/MAS)-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of several applications by the FD/MAS Alliance’s Scientific […]
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FDF and UPenn ODC Award Two FD/MAS Research Grants
Foundation News Research NewsThe Fibrous Dysplasia Foundation and the University of Pennsylvania Orphan Disease Center are pleased to announce the winners of the 2019 Million Dollar Bike Ride research grants. These important seed grants pave the way for new, innovative research to investigate fibrous dysplasia and McCune-Albright syndrome (FD/MAS). This year’s awardees are: Dr. Yingzi Yang of the […]
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The Physician Researcher and FD/MAS as a Spectrum
Foundation News Research NewsKelly Wentworth, M.D.is an assistant professor in the School of Medicine at the University of California, San Francisco and one of the four researchers to receive a Team FD Million Dollar Bike Ride research grant in 2018. Her project year is nearly done, and her work in FD/MAS will continue. Dr. Wentworth was recently awarded […]
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FD/MAS Research Projects Continue
Foundation News Research NewsOne of the exciting aspects of the Million Dollar Bike Ride fundraiser is how quickly the gifts from patients, friends and family go directly towards actual FD/MAS science. In July, UPenn announced that $273,000 would be awarded to the best proposals for FD/MAS studies, and researchers from around the world have already turned in their […]
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The Dream Team: Team FD 2018
Foundation News Research NewsThe May 20th, 2018 Million Dollar Bike Ride marked Team Fibrous Dysplasia’s fourth consecutive year participating in University of Pennsylvania Orphan Disease Center’s charity ride for rare disease research. Team FD raised a record breaking $272,712.14 for FD/MAS research–more than the amounts raised in 2016 and 2017 combined. 100% of that sum will go directly to […]
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Just Keep Pedaling: An Overwhelming Success!
Foundation News Research NewsMay 20th marked the third consecutive year that Team FD participated in the Million Dollar Bike Ride to raise funds for FD/MAS research. Team Captain Cindi Brandt Levin calls this our most successful year yet. Team FD had a total of 7 peer-to-peer fundraising campaigns and 12 riders in the 2017 event. Previous years have seen […]
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