2021 Team FD/MAS Research Grants Announced
Foundation News Research NewsFD/MAS Alliance is thrilled to share that three FD/MAS research grants have been awarded from the 2021 Million Dollar Bike Ride! Last spring, Team FD/MAS raised $161,373 for fibrous dysplasia, McCune-Albright syndrome (FD/MAS)-focused research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride. After careful review of several applications by the FD/MAS Alliance’s Scientific […]
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2018 Team FD Awardees: Spring 2020 Update
Foundation News Research NewsThe Fibrous Dysplasia Foundation (FDF) and the University of Pennsylvania Orphan Disease Center announced the four winners of the 2018 Million Dollar Bike Ride research grants in December 2018, and the awardees began their studies in early 2019. These important grants fund innovative research to investigate fibrous dysplasia/McCune-Albright syndrome (FD/MAS). Each investigator recently provided a […]
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One Boy’s Question, One Family’s Answer
Foundation News Patient SpotlightOrit Beitler and Ziv Rozenblum of Massachusetts joined Team FD as fundraisers for the first time this year. “Our son Jonathan is 7 years old and was diagnosed with fibrous dysplasia (FD) when he was 5. It all started with a rapid and unexpected loss of weight followed by a fracture to his skull as […]
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From Hobby to Hope: How a Mother’s Love is Fighting FD/MAS in France
Foundation News Patient SpotlightWhether you love the cooler temperatures of fall, or hate it, Aurélie Lagneau of France has given the FD/MAS community a new reason to be enthusiastic about sweater weather. This avid knitter has taken her skill with yarn and her love for her daughter to create a unique fundraiser, Supportive Skein, which has already raised $28,000 […]
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The Dream Team: Team FD 2018
Foundation News Research NewsThe May 20th, 2018 Million Dollar Bike Ride marked Team Fibrous Dysplasia’s fourth consecutive year participating in University of Pennsylvania Orphan Disease Center’s charity ride for rare disease research. Team FD raised a record breaking $272,712.14 for FD/MAS research–more than the amounts raised in 2016 and 2017 combined. 100% of that sum will go directly to […]
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Just Keep Pedaling: An Overwhelming Success!
Foundation News Research NewsMay 20th marked the third consecutive year that Team FD participated in the Million Dollar Bike Ride to raise funds for FD/MAS research. Team Captain Cindi Brandt Levin calls this our most successful year yet. Team FD had a total of 7 peer-to-peer fundraising campaigns and 12 riders in the 2017 event. Previous years have seen […]
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