FD/MAS Alliance and UPenn ODC Award the 2020 FD/MAS Research Grant
Foundation News Research NewsWe’re thrilled to share the news that the 2020 Team FD/MAS Million Dollar Bike Ride Research Grant has been awarded to Dr. Mara Riminucci for her project entitled: Osteoclasts and Pain in Fibrous Dysplasia: Investigating and targeting the molecular links in a transgenic mouse model (EF1α-GsαR201C mice) of human fibrous dysplasia Dr. Riminucci will receive […]
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2018 Team FD Awardees: Spring 2020 Update
Foundation News Research NewsThe Fibrous Dysplasia Foundation (FDF) and the University of Pennsylvania Orphan Disease Center announced the four winners of the 2018 Million Dollar Bike Ride research grants in December 2018, and the awardees began their studies in early 2019. These important grants fund innovative research to investigate fibrous dysplasia/McCune-Albright syndrome (FD/MAS). Each investigator recently provided a […]
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FD/MAS Research Projects Continue
Foundation News Research NewsOne of the exciting aspects of the Million Dollar Bike Ride fundraiser is how quickly the gifts from patients, friends and family go directly towards actual FD/MAS science. In July, UPenn announced that $273,000 would be awarded to the best proposals for FD/MAS studies, and researchers from around the world have already turned in their […]
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Research in Progress: Catching Up with Mara Riminucci
Foundation News Research NewsThanks to Team FD and the 7 campaigns that raised funds to support FD/MAS research, two researchers will receive $53,614 to study this rare disease. If you raised funds or donated to a campaign, you should be especially proud. The progress we make next year will be directly because of your efforts. As scientists prepare […]
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When in Rome: Fight for Real Progress
Advocacy News Foundation News Research NewsAs the international research conversations about fibrous dysplasia and McCune-Albright syndrome (FD/MAS) treatment continue to build, patients need to be at the center of that dialogue. “As a kid and teenager, I only talked about my MAS when I was at the doctor’s office. That was it,” said FDF Board member and MAS patient, Lauren […]
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