
Researchers Pursue a Comparative Effectiveness Study with support from the FD/MAS Patient Registry.
Foundation News Research NewsThe FD/MAS Patient Registry has been gathering data for almost a full year. In July, Fibrous Dysplasia Foundation (FDF) received the exciting news that a team of researchers and patient advocates will rely on registry data to design and develop a research proposal. Together, FDF President Catherine Fairchild, President Emeritus Amanda Konradi, Phd, Andrea Burke […]
Click to Read