$160K FD/MAS Research Funding Available
Foundation News Research NewsWe are delighted to share the Request for Applications for this year’s Team FD/MAS Million Dollar Bike Ride grants: Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare multisystem disease caused by somatic mutations in GNAS. The mutation results in constitutive activation of the Gsα cAMP signaling pathway. Skeletal manifestations include bone pain, fractures, deformity, and […]
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How close are we to developing a drug to treat FD/MAS?
Research NewsHow close are we to finding a treatment for FD/MAS? An audience member posed this question in a recent update from 4 researchers funded by Team FD/MAS, and the answer? It depends. Because of your generosity, the last few years have been a real breakthrough for FD/MAS. Team FD/MAS has been partnering with the […]
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FD/MAS Alliance and UPenn ODC Award the 2020 FD/MAS Research Grant
Foundation News Research NewsWe’re thrilled to share the news that the 2020 Team FD/MAS Million Dollar Bike Ride Research Grant has been awarded to Dr. Mara Riminucci for her project entitled: Osteoclasts and Pain in Fibrous Dysplasia: Investigating and targeting the molecular links in a transgenic mouse model (EF1α-GsαR201C mice) of human fibrous dysplasia Dr. Riminucci will receive […]
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2018 Team FD Awardees: Spring 2020 Update
Foundation News Research NewsThe Fibrous Dysplasia Foundation (FDF) and the University of Pennsylvania Orphan Disease Center announced the four winners of the 2018 Million Dollar Bike Ride research grants in December 2018, and the awardees began their studies in early 2019. These important grants fund innovative research to investigate fibrous dysplasia/McCune-Albright syndrome (FD/MAS). Each investigator recently provided a […]
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A New Team FD/MAS, Same Focus on Research
Foundation News Research NewsThe year 2020 has felt different from 2019 in so many ways, but some important things have remained consistent. This year, just as in the last 5 years, Team FD/MAS will be awarding a research grant to an FD/MAS researcher through the UPenn Orphan Disease Center’s (ODC) Million Dollar Bike Ride. With thanks to Association […]
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The Physician Researcher and FD/MAS as a Spectrum
Foundation News Research NewsKelly Wentworth, M.D.is an assistant professor in the School of Medicine at the University of California, San Francisco and one of the four researchers to receive a Team FD Million Dollar Bike Ride research grant in 2018. Her project year is nearly done, and her work in FD/MAS will continue. Dr. Wentworth was recently awarded […]
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The Dream Team: Team FD 2018
Foundation News Research NewsThe May 20th, 2018 Million Dollar Bike Ride marked Team Fibrous Dysplasia’s fourth consecutive year participating in University of Pennsylvania Orphan Disease Center’s charity ride for rare disease research. Team FD raised a record breaking $272,712.14 for FD/MAS research–more than the amounts raised in 2016 and 2017 combined. 100% of that sum will go directly to […]
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So, what’s the deal with this Million Dollar Bike Ride?
Foundation News Research NewsFor the last four years the FD/MAS community has been REALLY excited about a particular bike ride in Philadelphia. It’s not that we’re super cyclists, it’s just that this event happens to be the biggest driver of private FD/MAS research funding in the world. Through the Million Dollar Bike Ride, Team Captain Cindi Brandt Levin […]
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2017 FD/MAS Research Grant Announcement
Foundation News Research NewsThis past week, the UPenn Medicine Orphan Disease Center awarded the much anticipated 2017 Million Dollar Bike Ride research grants. These awards are highly competitive and provide funds for research proposals to investigate fibrous dysplasia and McCune-Albright syndrome (FD/MAS). Thanks to Team Captain Cindi Brandt Levin and six other successful campaigners, this year the FD/MAS […]
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Just Keep Pedaling: An Overwhelming Success!
Foundation News Research NewsMay 20th marked the third consecutive year that Team FD participated in the Million Dollar Bike Ride to raise funds for FD/MAS research. Team Captain Cindi Brandt Levin calls this our most successful year yet. Team FD had a total of 7 peer-to-peer fundraising campaigns and 12 riders in the 2017 event. Previous years have seen […]
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