Join Team FD/MAS 2022

FD/MAS Patients Need and Deserve Better Treatments  

Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare and debilitating disease that has no FDA-approved treatment. It causes fibrous tissue to grow in place of healthy bone and often causes chronic pain, loss of mobility, hormonal imbalances, skin marks, deformity, and more. There is no cure and no way to slow the disease down.

In seven years, Team FD/MAS has raised over $900,000 for FD/MAS research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride (MDBR) thanks to Team Captain Cindi Brandt Levin, the Levin family, the FD/MAS Alliance, and the FD/MAS community. These research grants are focused on developing a deeper understanding of the disease and finding better treatments (and someday a cure)!

Learn more about previous Team FD/MAS awardees here.

We All Do Better When We Pedal Together

Ways to Participate in Team FD/MAS

Ride with Team FD/MAS on Saturday, June 11, 2022! You can participate on or off a bike, in-person with Team FD/MAS in Philadelphia, or virtually from anywhere in the world!

Registration WITH fundraising is $25 (must raise at least $250 by June 11, 2022), or register to ride without fundraising. Either way, 100% of your registration dollars go towards your team's research grant! AND UPenn will match the first $30K raised for research grants.

You can also register to ride virtually!

The MDBR Virtual Spin Class is on June 6, 2022. Can't join us for the in-person event, or want to squeeze in one last training ride? Spin with us on June 6th at 7 pm ET in honor of rare disease research.
Registration for this virtual option is free. However, a $10 donation is suggested. 100% of your donation will be added to Team FD/MAS's fundraising efforts.

Register to Join Team FD/MAS
Can I donate or fundraise for Team FD/MAS?

YES!

You can donate or start your fundraising page here.

All registration fees for riders on Team FD/MAS (virtual or in-person) will go directly to FD/MAS research grants through UPenn. See the orange box above if you would like to register to be on our Team Roster. Subsequent donations are split between the FD/MAS research grants (80%) and the FD/MAS Alliance (20%) to support our organization’s key programs and infrastructure. These programs include the FD/MAS Patient Registry to facilitate research, and continued advocacy work to unlock potential monumental FD/MAS research funding as part of the Department of Defense’s Peer-Reviewed Medical Research Program (PRMRP)

If you have any questions about the FD/MAS Alliance, Team FD/MAS, or this event, email Executive Director Adrienne McBride, amcbride@fibrousdysplasia.org, and she’ll be happy to chat with you.

Support Team FD/MAS Research