News

Team FD/MAS 2024 Update!

UPDATED JUNE 18th 2024:

We are excited to share that we’ve received over 150 donations for Team FD/MAS research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride (MDBR). Thanks to a $30,000 match from UPENN and donations from the Association MAS/FD in France, we’ve already raised over $100,000. THANK YOU!

But we’re not done yet! We have until June 21 to collect more donations, and we need your help to reach our goal.

With just $19,200 more, we’ll have enough to pay for three important research studies, each needing at least $40,000.

As our Team Captain, Cindi Brandt Levin, said, hearing about the good things our MDBR research grants have done gives us hope for the future. Let’s work together to make a difference today. If you haven’t donated yet, your gift can help fund FD/MAS research.

We really appreciate your continued support!