Team FD/MAS - FD/MAS Alliance

Team FD/MAS is on a ROLL!

12 years
22 research projects
$1.2 MILLION+ to FD/MAS Research!

FD/MAS Patients Need and Deserve Better Treatments

Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare and debilitating disease without an FDA-approved treatment. It causes fibrous tissue to grow in place of healthy bone and often causes chronic pain, loss of mobility, hormonal imbalances, skin marks, deformity, and more. There is no cure and no way to slow the disease down.

In eleven years, Team FD/MAS has raised over $1.2 Million for FD/MAS research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride (MDBR) thanks to Team Captain Cindi Brandt Levin, the Levin family, the FD/MAS Alliance, and the FD/MAS community. These research grants are focused on developing a deeper understanding of the disease and finding better treatments (and someday a cure)!

Learn more about previous Team FD/MAS awardees here.

Ways to Participate in Team FD/MAS

If you're interested in joining us in person on June 13th in Philadelphia, please reach out to Tovah Burstein via TBurstein@fibrousdysplasia.org.

The event is a fun filled family morning with varying length bike routes and a one-mile fun walk. Meet other FD/MAS community members and advance FD/MAS research!

Registration WITH fundraising will be $30 (must raise at least $250 by the event day).

Learn more and register

YES!

All donations will support our organization’s key research programs and infrastructure. This year we’re focusing especially on the FD/MAS Patient Registry and critical updates to this invaluable research resource.

If you have any questions about the FD/MAS Alliance, Team FD/MAS, or this event, email Executive Director Tovah Burstein TBurstein@fibrousdysplasia.org, and she’ll be happy to chat with you.

Support Team FD/MAS Research

Join Team FD/MAS 2026

Ways to Participate in Team FD/MAS

YES!