Team FD/MAS - FD/MAS Alliance

FD/MAS Patients Need and Deserve Better Treatments

Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare and debilitating disease without an FDA-approved treatment. It causes fibrous tissue to grow in place of healthy bone and often causes chronic pain, loss of mobility, hormonal imbalances, skin marks, deformity, and more. There is no cure and no way to slow the disease down.

In eight years, Team FD/MAS has raised over $1 Million for FD/MAS research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride (MDBR) thanks to Team Captain Cindi Brandt Levin, the Levin family, the FD/MAS Alliance, and the FD/MAS community. These research grants are focused on developing a deeper understanding of the disease and finding better treatments (and someday a cure)!

Learn more about previous Team FD/MAS awardees here.

Ways to Participate in Team FD/MAS

If you're interested in joining us in person on June 10th in Philadelphia, please reach out to Adrienne McBride via AMcBride@fibrousdysplasia.org.

Registration WITH fundraising will be $30 (must raise at least $250 by the event day). 100% of your registration dollars go towards your team's research grant! AND UPenn will match the first $30K raised for research grants.

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All registration fees for riders on Team FD/MAS (virtual or in-person) will go directly to FD/MAS research grants through UPenn. See the orange box above to register for our Team FD/MAS. Subsequent donations are split between the FD/MAS research grants (80%) and the FD/MAS Alliance (20%) to support our organization’s key programs and infrastructure. These programs include the FD/MAS Patient Registry to facilitate research and continued advocacy work to unlock potential monumental FD/MAS research funding as part of the Department of Defense’s Peer-Reviewed Medical Research Program (PRMRP).

If you have any questions about the FD/MAS Alliance, Team FD/MAS, or this event, email Executive Director Adrienne McBride amcbride@fibrousdysplasia.org, and she’ll be happy to chat with you.

Support Team FD/MAS Research

Join Team FD/MAS 2023

Ways to Participate in Team FD/MAS

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FD/MAS patients need and deserve better treatments. FD/MAS Alliance is raising funds to strengthen our community and increase our investment in research and education to meet the needs of those living with FD/MAS.