Join Team FD/MAS 2021

Can I donate or fundraise for Team FD/MAS?

YES!

You can donate or start your fundraising page here.

All registration fees will go directly to FD/MAS research grants through UPenn. Subsequent donations are split between the FD/MAS research grants (80%) and the FD/MAS Alliance (20%) to support our organization’s key programs and infrastructure. These programs include the FD/MAS Patient Registry to facilitate research, and continued advocacy work to unlock potential monumental FD/MAS research funding as part of the Department of Defense’s Peer-Reviewed Medical Research Program (PRMRP).

If you have any questions about the FD/MAS Alliance, Team FD/MAS, or this event, email Executive Director Adrienne McBride, amcbride@fibrousdysplasia.org, and she’ll be happy to chat with you.

Support Team FD/MAS Research
Team FD/MAS 2020
Coming Together Virtually During COVID-19

Ways to Participate on Saturday, June 12th

VIRTUAL SPIN CLASS & PRESENTATION
SAT JUNE 12TH @11AM EDT
Join us for a 45-minute virtual spin class led by Pro Cyclist Nikki Theimann. Hop on your stationary bike, treadmill, ellipticals, rower, or however you want to participate! We will have a brief program to recognize MDBR teams, fundraisers, cyclists, and challenge winners, followed by an all-level spin class with Nikki and the ODC team. All registered MDBR cyclists will receive the link to join us live on June 12th.

SOULCYCLE X MDBR
SAT JUNE 12TH @3PM EDT
SoulCycle Ardmore is generously hosting a 45-minute in-person spin class at their indoor location in Ardmore, PA. We will have a TEAM FD/MAS representative participating with other disease teams and sponsors along for the ride!

Register to Join Team FD/MAS

FD/MAS Patients Need and Deserve Better Treatments  

Fibrous dysplasia/McCune-Albright syndrome (FD/MAS) is a rare and debilitating disease that has no FDA-approved treatment. It causes fibrous tissue to grow in place of healthy bone and often causes chronic pain, loss of mobility, hormonal imbalances, skin marks, deformity, and more. There is no cure and no way to slow the disease down.

In six years, Team FD/MAS has raised almost $750,000 for FD/MAS research through the UPenn Orphan Disease Center’s Million Dollar Bike Ride (MDBR) thanks to Team Captain Cindi Brandt Levin, the Levin family, the FD/MAS Alliance, and the FD/MAS community. These research grants are focused on developing a deeper understanding of the disease and finding better treatments (and someday a cure)!

Learn more about previous Team FD/MAS awardees here.