The FD Foundation Gains 13 Champions
Led by Senator John Kerry and Congressman James McGovern of Massachusetts, six senators and 7 congressional representatives sent a letter to the head of the NIH, Dr. Francis Collins in March, 2010, urging the NIH to continue funding research on rare diseases like FD/MAS.
| Signing Senators | Signing Congressional Representatives |
| John F. Kerry (Massachusetts) | Jim McGovern (Massachusetts) |
| Daniel K. Inouye (Hawaii) | William D. Delahunt (Massachusetts) |
| Jeff Merkley (Oregon) | Richard E. Neal (Massachusetts) |
| Patty Murray (Washington) | John W. Olver (Massachusetts) |
| Jeanne Shaheen (New Hampshire) | Raul M. Girjalva (Arizona) |
| Ron Wyden (Oregon) | David Wu (Oregon) |
| Bill Cassidy (Louisiana) |
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Update: NIH Director Francis Collins replied! His supportive response is below.
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