The FD Foundation Gains 13 Champions




Senator John Kerry

Led by Senator John Kerry and Congressman James McGovern of Massachusetts, six senators and 7 congressional representatives sent a letter to the head of the NIH, Dr. Francis Collins in March, 2010, urging the NIH to continue funding research on rare diseases like FD/MAS.




Signing SenatorsSigning Congressional Representatives
John F. Kerry (Massachusetts)Jim McGovern (Massachusetts)
Daniel K. Inouye (Hawaii)William D. Delahunt (Massachusetts)
Jeff Merkley (Oregon)Richard E. Neal (Massachusetts)
Patty Murray (Washington)John W. Olver (Massachusetts)
Jeanne Shaheen (New Hampshire)Raul M. Girjalva (Arizona)
Ron Wyden (Oregon)David Wu (Oregon)
Bill Cassidy (Louisiana)


[dg ids=”496″]


Update: NIH Director Francis Collins replied!  His supportive response is below.


[dg ids=”497″]