Thank you for applying as a community speaker for the FD/MAS Research Priorities Workshop. We know each of you has a valuable perspective to share and we’re grateful for your time and engagement.
What to expect next:
A committee of community members and clinical advisors will review deidentified applications (meaning all identifying information will be removed) and select a small group of speakers.
This process may include a representative from FD/MAS Alliance reaching out to you to schedule a brief phone call.
We aim to represent the diversity of experiences within the fibrous dysplasia, McCune-Albright syndrome community across the spectrum of clinical presentations. Our decisions will be driven first by that effort and then by the desire to work with those who are engaged in our vision of a future where everyone with FD/MAS can thrive.
We hope to have all speaking positions filled by the end of January 2026.
If you wish to set up a phone call to ask questions or discuss this opportunity further, please reach out to Tovah Burstein via tburstein@fibrousdysplasia.org.
Support the Workshop
The FD/MAS Research Priorities Workshop is made possible by donations and sponsorships. Your tax-deductible individual donation or organizational sponsorship will help ensure that this Workshop is a success, promote the advancement of evidence-based research, and amplify the voices of people living with FD/MAS.
To learn more about sponsorship opportunities, reach out to Tovah Burstein or make a gift here. In such a small organization, every gift goes a long way.