FD/MAS Alliance is hosting a Research Priorities Workshop in Philadelphia, PA, thanks to the generous support from Dr. Eric Liao and the Children’s Hospital of Philadelphia (CHOP).
This one-day meeting of patients and researchers aims to inform and shape the FD/MAS research agenda.
Please complete this form to register as a speaker at this workshop. Any questions can be directed to Tovah Burstein: tburstein@fibrousdysplasia.org
The FD/MAS Research Priorities Workshop is made possible by donations and sponsorships. Your tax-deductible individual donation or organizational sponsorship will help ensure that this Workshop is a success, promote the advancement of evidence-based research, and amplify the voices of people living with FD/MAS.
To learn more about sponsorship opportunities, reach out to Tovah Burstein or make a gift here. In such a small organization, every gift goes a long way.
With Thanks to our Planning Committee
Chair:
Michael Collins, MD, Scientific Advisory Council Chair
Tovah Burstein, FD/MAS Alliance Interim Executive Director
Kelly Cohen, FD/MAS Alliance President Emeritus
Anne Corvelle, FD/MAS Alliance Board President
Nicola Deeley, FD/MAS Alliance Board Vice President and Patient Advisory Council Member
Eric Liao, MD, FD/MAS Alliance Board Director
Carmel Shemmesh-Rafalowsky, FD/MAS Alliance Board Director
FD/MAS Alliance will follow CDC guidelines to ensure the safety of all participants in this event. Please check back in for details as the Conference approaches.
